Federation for Rare Diseases Raising Public Awareness of Such Illnesses

ZAGREB, October 20, 2019 – The Croatian national federation for rare diseases on Saturday organised events in Zagreb’s Zrinjevac square to raise awareness of such diseases.

Rare diseases are considered to be those that affect fewer than five people per 10,000 inhabitants. About 250,000-300,000 people in Croatia are estimated to be suffering from such diseases.

The national federation is an umbrella association with over 1,000 individual members and 28 associations acting for the benefit of patients with more than 400 different rare diagnoses.

The federation is planning to open a centre for people affected by such diseases, the federation’s vice-president Sara Bajlo said.

It is also preparing the development of a database.

Some of the most important activities of the federation is to provide psychosocial help and support to its members and to manage the Croatian Help Line for Rare Diseases (- 0800 99 66 -).

More health news can be found in the Lifestyle section.

 

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